For the first time, Hospital Kuala Lumpur (HKL) is proudly hosting the annual Rare Disease Day 2025 celebration to raise ...
The last day of February is Rare Disease Day, and one Union County group wanted to shine a light on those living with rare ...
MADISON, Wis. (WIFR) - For 14 years, Treyson Wallace’s family searched for answers. Born in 2009, Treyson failed a newborn ...
On the very day Noa was diagnosed, an experimental gene therapy and clinical trial were posted to treat Canavan disease. Noa was only the third patient in the world to be dosed with the gene therapy, ...
The last day of February is Rare Disease Day, and one Union County group wanted to shine a light on those living with rare ...
President Donald Trump is expected to sign an executive order designating English as the official language of the United ...
Rare Disease Day, observed on Feb. 28, brings attention to uncommon diseases affecting populations of 200,000 or fewer. In ...
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Vermont organization spotlights Rare Disease DayFriday is Rare Disease Day, which raises awareness for rare diseases and aims to improve access to treatment and medical ...
Williams, who has performed the National Anthem at baseball stadiums as part of Boehringer Ingelheim’s Breathless campaign, ...
Every year since 2008, Rare Disease Day has been held on the last day of February to raise awareness about the research that goes into rare diseases like spinal muscular atrophy (SMA).
A Lancaster County mother and father are sharing their story in hopes of raising awareness of the uncommon genetic disorder their child is facing. There's no treatment and no cure, but the family is ...
In honor of Rare Disease Day, the Celtics are teaming with Takeda Pharmaceuticals to raise awareness and support for the rare disease community.
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