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Hospital Kuala Lumpur & Rare Disease Patient Organizations Nationwide Celebrate Rare Disease Day 2025
For the first time, Hospital Kuala Lumpur (HKL) is proudly hosting the annual Rare Disease Day 2025 celebration to raise ...
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The Rare Health Condition Venus Williams Lives With
Tennis star Venus Williams is impressive both on and off the court, but she's struggled with a health condition that almost ...
Family finds rare disease diagnosis after 14-year search
MADISON, Wis. (WIFR) - For 14 years, Treyson Wallace’s family searched for answers. Born in 2009, Treyson failed a newborn ...
Clinical trial provides hope for Mass. child with rare genetic disorder
On the very day Noa was diagnosed, an experimental gene therapy and clinical trial were posted to treat Canavan disease. Noa was only the third patient in the world to be dosed with the gene therapy, ...
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Detroit Lions VP raises awareness for daughter's rare disease
Like most children, Morgan enjoys games, showing off her toys, and spending some time on her tablet. But sadly, unlike most children, Morgan is living life with an ultra-rare disease. Her mother, ...
Discovery at Massachusetts General Hospital creates roadmap for a rare disease
Rithvik wasn’t dealt an easy hand in life. His first symptom — a distended abdomen — was identified during his birth ...
Lions VP raises awareness for her daughter's rare disease
Morgan is living life with an ultra-rare disease. Her mother, Kelly Kozole, says doctors diagnosed Morgan with beta-propeller ...
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Union Co. group raises awareness for rare diseases
The last day of February is Rare Disease Day, and one Union County group wanted to shine a light on those living with rare ...
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What Trump's order making English the official language in the US could mean
President Donald Trump is expected to sign an executive order designating English as the official language of the United ...
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Rare Disease Day highlights awareness, research efforts happening in Roanoke and New River Valley
Rare Disease Day, observed on Feb. 28, brings attention to uncommon diseases affecting populations of 200,000 or fewer. In ...
After A Five-Tool Career, Bernie Williams Steps To The Plate To Take On Rare Disease Day
Williams, who has performed the National Anthem at baseball stadiums as part of Boehringer Ingelheim’s Breathless campaign, ...
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5-year-old inspires dad to create nonprofit helping those with rare diseases
Eyewitness News joined a visit to the Viscardi Center in Albertson, with 5-year-old Eli Reich, his father Scott, and the team of extraordinary staff guiding him through kindergarten.