UN Secretary-General António Guterres addresses the ongoing risk of pandemics, highlighting concerns over vaccine skepticism, ...
The editorial board comments that “without a strategic plan that prioritizes affordable housing … the cycle will persist.” ...
Donna Reynolds of Richmond knows all too well the devastating toll that a rare disease can take, not just on an individual, but on an entire family.
Local nonprofit Jack's Generosity hosted an event called Unique Jeans to raise awareness for rare ARS gene diseases.
MADISON, Wis. (WIFR) - For 14 years, Treyson Wallace’s family searched for answers. Born in 2009, Treyson failed a newborn ...
On the very day Noa was diagnosed, an experimental gene therapy and clinical trial were posted to treat Canavan disease. Noa was only the third patient in the world to be dosed with the gene therapy, ...
Like most children, Morgan enjoys games, showing off her toys, and spending some time on her tablet. But sadly, unlike most children, Morgan is living life with an ultra-rare disease. Her mother, ...
Rithvik wasn’t dealt an easy hand in life. His first symptom — a distended abdomen — was identified during his birth ...
Morgan is living life with an ultra-rare disease. Her mother, Kelly Kozole, says doctors diagnosed Morgan with beta-propeller ...
The last day of February is Rare Disease Day, and one Union County group wanted to shine a light on those living with rare ...
President Donald Trump is expected to sign an executive order designating English as the official language of the United ...
“So Ataxia-Telangiectasia is similar in ways to muscular dystrophy, meaning it’s a neuromuscular progressive disorder. So ...
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