manilatimes4h
Hospital Kuala Lumpur & Rare Disease Patient Organizations Nationwide Celebrate Rare Disease Day 2025
For the first time, Hospital Kuala Lumpur (HKL) is proudly hosting the annual Rare Disease Day 2025 celebration to raise ...
Doctors sound alarm as nine children die from brain-rotting condition that leaves them drooling, hallucinating
Nearly a dozen children this flu season have developed a rare brain disorder that causes seizures, loss of consciousness, ...
5 Rare Disease You Must Be Aware Of
Rare disease may not affect large portions of the population, but their impact on individuals is profound. Here are 5 rare ...
Khaleej Times8h
Dubai resident runs 50km to raise awareness about rare diseases
Dubai resident Stephen Melia runs 50km to raise awareness about rare diseases, partnering with High Hopes Pediatric Therapy ...
Family finds rare disease diagnosis after 14-year search
MADISON, Wis. (WIFR) - For 14 years, Treyson Wallace’s family searched for answers. Born in 2009, Treyson failed a newborn ...
City News14h
World Rare Disease Day: Edmonton area Guillain-Barré syndrome survivor shares her story
Holly Helm’s life changed forever. “It was like life changed within a blink of an eye,” she explained. “I was completely ...
Clinical trial provides hope for Mass. child with rare genetic disorder
On the very day Noa was diagnosed, an experimental gene therapy and clinical trial were posted to treat Canavan disease. Noa was only the third patient in the world to be dosed with the gene therapy, ...
WJBK14h
Detroit Lions VP raises awareness for daughter's rare disease
Like most children, Morgan enjoys games, showing off her toys, and spending some time on her tablet. But sadly, unlike most children, Morgan is living life with an ultra-rare disease. Her mother, ...
Discovery at Massachusetts General Hospital creates roadmap for a rare disease
Rithvik wasn’t dealt an easy hand in life. His first symptom — a distended abdomen — was identified during his birth ...
Lions VP raises awareness for her daughter's rare disease
Morgan is living life with an ultra-rare disease. Her mother, Kelly Kozole, says doctors diagnosed Morgan with beta-propeller ...
WCAX315h
Vermont organization spotlights Rare Disease Day
Friday is Rare Disease Day, which raises awareness for rare diseases and aims to improve access to treatment and medical representation for individuals with rare diseases and their families.
WSPA15h
Union Co. group raises awareness for rare diseases
The last day of February is Rare Disease Day, and one Union County group wanted to shine a light on those living with rare ...