A patient at Prisma Health Children's Hospital Midlands in South Carolina died after being infected with Naegleria fowleri, a brain-eating amoeba, Dr. Anna Kathryn Burch, a pediatric infectious disease specialist, said during a press conference on July 22.

Nationwide, there have only been 167 cases of Naegleria fowleri in the past 62 years — but only four of those survived, according to the CDC.

COLUMBIA, S.C. — The parents of 12-year-old Jaysen Carr, who died earlier this month after contracting a rare brain-eating amoeba, spoke publicly for the first time Tuesday, calling on state agencies and lawmakers to take action so that no other family experiences the pain they are now facing.