That’s exactly what Charlie Nuck and Todd Downey, both from Ohio, have done. After biking more than 4,200 miles from Anacortes, Washington, the pair arrived in Bar Harbor, completing a two-month trek ...

Maine (WABI) - After 61 days and approximately 4,200 miles, two men have made it to Maine to wrap up an epic journey. At the ...

Cyclists led by Charlie Nuck will arrive in Bar Harbor Saturday to raise awareness and funds for the rare neurogenetic ...

Angelman syndrome is a lifelong neurodevelopmental disorder that causes cognitive impairment, motor impairment, balance issues and debilitating seizures.

Investing.com -- Ultragenyx Pharmaceutical (TADAWUL: 2070) Inc. (NASDAQ: RARE) stock gained 2.2% premarket after the company announced that its experimental treatment for Angelman syndrome received ...

Investing.com -- Ultragenyx Pharmaceutical Inc. (NASDAQ: RARE) stock gained 2.2% premarket after the company announced that its experimental treatment for Angelman syndrome received Breakthrough ...

Phase 3 Aspire study enrollment on track to complete in 2025 Aurora study to evaluate GTX-102 in other Angelman syndrome genotypes and ages expected to initiate later this year NOVATO, Calif ...

Bike 4 Briar cyclists cross the country to support Angelman syndrome research The Bike for Briar team, consisting of Todd Downey and Charlie Nuck, is biking 4,200 miles across the U.S. and passed ...

The initial participant in the pivotal Phase 3 REVEAL trial, which is assessing ION582 for Angelman syndrome, a severe neurodevelopmental disease, has been dosed by Ionis Pharmaceuticals, Inc ...