News

Hemophilia patients have higher rates of mental distress, with physical symptoms like pain and infections playing a role, a ...
Columnist Joe MacDonald shares his practical advice for how to help a child define their identity beyond their hemophilia diagnosis.
Columnist G Shellye Horowitz shares tips you can use to support a loved one who may be feeling anxiety due to concerns about hemophilia.
Columnist Jennifer Lynne knows from experience the importance of a hematologist's input when mulling surgery with her bleeding disorders.
Columnist G Shellye Horowitz was nervous to visit a new doctor, but says she felt reassured by three comments the ...
The dance in our kitchen hadn’t stopped; it’d only paused. As Julian passed me a warm tortilla, Joe poured a glass of tea, and Caeleb grabbed a few warm cookies, I stepped back into the rhythm of the ...
It was eye-opening for columnist G Shellye Horowitz to learn the correlation between obesity, joint pain, and bleeds.
For columnist Alliah Czarielle's husband, hemophilia demands a slow and intentional life. It's not glamorous, but there is much hidden value.
Adults with hemophilia who switched from standard to extended half-life replacement treatment products had fewer bleeding episodes.
Even with two diagnosed bleeding disorders, columnist Jennifer Lynne still hesitates to identify a bleed due to years of medical dismissal.
Columnist Joe MacDonald was happy to see his son solving a problem without any prompting — a sign that he's ready to live independently.
Helping people brings me joy. As a hospice chaplain assisting families through their darkest hours, I am truly fulfilled. Outside of my work, my heart is full when I can make dinner, pick up groceries ...