News

Since New Year's Eve 2019, this "happy" and "positive" little girl has suffered a seizure almost every day. Poppy Whinney was ...
This rare form of epilepsy strikes babies and causes seizures that recur over time. WebMD explains what causes Dravet syndrome, how it’s diagnosed, and what the treatments are.
Dravet syndrome was once known as severe myoclonic epilepsy of infancy, or SMEI. When the syndrome was first described in the late 1970s and early 1980s, ...
Dravet syndrome is a severe form of epilepsy, usually diagnosed in infancy, that is associated with developmental delays and severe seizures. It has long been recognized for its neurological symptoms, ...
Things took a turn when mom discovered Dravet syndrome while looking into what her son's symptoms could possibly mean. The condition is a rare form of epilepsy that causes frequent seizures. "In ...
A woman has completed a challenge to walk 5km a day during the month of May in order to raise funds and awareness of the rare condition she has. Lucy Murphy, 25, from Exeter, has Dravet Syndrome ...
Dravet syndrome is a rare, genetic disorder characterized by severe, early-onset epilepsy. It is typically caused by mutations in the SCN1A gene, which impairs the functioning of the brain's neurons ...
Biogen and Stoke Therapeutics have signed a deal to co-develop and sell Stoke’s experimental drug for Dravet syndrome, outside the U.S.
Stoke Therapeutics is nearing FDA sign-off on a groundbreaking Phase 3 clinical trial designed to prove that its experimental drug for Dravet syndrome, a severe form of epilepsy, can both reduce ...
Most adults living with Dravet syndrome will never be unable to work or care for themselves, according to the Children’s Hospital of Philadelphia. Patient advocates in Georgia say the website ...
Jenece Bond and her daughter Taylen (courtesy) *Jenece Bond, founder of the Taylen Lauren Horton Foundation, a non-profit, is on a mission to change lives and raise awareness for Dravet syndrome ...
Dravet Syndrome is a rare, severe and lifelong form of epilepsy. There is very little awareness about it, and even less money being raised and going towards a cure.