The Carr family is urging state officials to take action to prevent future tragedies and raise awareness about the hidden dangers in South Carolina’s freshwater lakes.

Jaysen Carr died after contracting a rare infection brought on by a freshwater amoeba reportedly in a South Carolina lake. Carr's parents, Clarence and Ebony Carr, and their family attorney, Tyler Bailey,

Nationwide, there have only been 167 cases of Naegleria fowleri in the past 62 years — but only four of those survived, according to the CDC.